World Hemophilia Day 2023: On the 17th of April, it marks World Hemophilia Day. The day wishes to raise awareness among patients with this disease about the signs and symptoms of bleeding disorders. A rare disorder where the patient’s blood does not clot properly with a lack of clotting protein is considered to be one of those disorders.
A patient with such a kind of disease experiences unexpected damage, then the lack of clotting elements may cause extreme bleeding. They’re bleeding for a longer period.
World Hemophilia Day 2023: History
On the birthday of Frank Schnabel, a founder of the world’s homophileic federation, it has its roots in history.
To demonstrate solidarity with those affected by the disease, the World Federation has trained people from around the world in red lights.
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World Hemophilia Day 2023: Significance
Awareness raising of people with Hemophilia and related blood disorders is an important aspect of this day. Bleeding in muscles, joints and parts of the body may occur in severely ill patients.
This is an inherited disease, passed down to the child by their parents. Patients can therefore be encouraged to watch out for the disease and take precautionary measures if they are detected earlier.
World Hemophilia Day 2023: Theme
The theme for this year’s hemophilia day is “Access for All: Prevention of bleeds as the global standard of care”
World Hemophilia Day 2023: Importance
In 2000, it was estimated that 4 lakh persons, or around 1 in 10,000 live births, were affected by this disorder worldwide, and only 25% of those affected had access to adequate treatment. But in 2019, a meta-analysis found that there are 11.25 lakh more men in India who have the genetic bleeding condition.
The availability of effective haemophilia treatment is limited to only about 15 % of the global population in high-income countries. The lack of help with diagnosis and medicine guides to increased mortality and morbidity rates in low- and middle-income countries.
The 31st World Haemophilia Day has been celebrated this year and is dedicated to raising public awareness of the importance of supporting governments and policymakers in improving treatment, prevention and control of bleeds in persons with bleeding disorders.
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