World Haemophilia Day, observed on April 17, raises awareness about haemophilia- a rare inherited bleeding disorder. It highlights the importance of early diagnosis, proper treatment, and better healthcare support for those affected. The day encourages individuals with haemophilia to speak up about their needs.
While bruises or swelling in children may seem like normal signs of play, they can sometimes signal something more serious. In some cases, these symptoms may be early indicators of haemophilia, where the blood doesn’t clot properly. Recognizing these signs early can lead to timely care and improved quality of life for those living with the condition.
History of World Haemophilia Day
World Haemophilia Day was started in 1989 by the World Federation of Haemophilia to honour its founder, Frank Schnabel. He worked hard to spread awareness about haemophilia and spent his life helping people with the disorder.
Over time, this day became a global event as more people began to understand the condition and the need for proper treatment. Haemophilia is sometimes called the “royal disease” because it affected royal families, including a queen of Egypt.
Importance of World Haemophilia Day
World Haemophilia Day is not just about spreading awareness. It is also a time to see how far we have come and what challenges still need to be solved. The day reminds us that haemophilia is a serious condition that needs proper treatment, especially in places where healthcare is limited.
Haemophilia makes it hard for blood to clot, which can cause joint pain, weak bones, and internal bleeding. This day helps people learn about what causes haemophilia, its symptoms, and how it can be treated.
It also helps fight myths and stigma about the disease and asks governments and communities to support people living with it. Everyone with haemophilia deserves to live a healthy, respectful, and full life.
Understanding the Theme of World Haemophilia Day 2025
The theme for World Haemophilia Day 2025 is “Access for All: Women and Girls Bleed Too”. It focuses on giving more attention to women and girls who have bleeding disorders.
For a long time, people have thought haemophilia only affects men, so the problems faced by women have often been ignored. Now, it’s time to fix that and make sure women get the healthcare they need.
This year’s theme is about making sure girls and women with haemophilia are noticed and get the right treatment. Many are not diagnosed or are given the wrong diagnosis. They should get the same care as men. No one with haemophilia should be left out.
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